September 17, 2008

Patient Voices: Pancreatic Cancer

It is estimated that 5 percent of patients diagnosed with pancreatic cancer survive past five years. What is it like to be faced with such statistics? To survive? Here, in their own words, are the experiences of seven men and women. (Join the discussion here.)

39 prior comments

My friend had horrible headaches after FLU symptoms in mid Sept ... doctors were trying to pinpoint the anemia and then finally found pancreatic and liver cancers

She died less than 6 months later, and although cancer will be written down as the cause of death, I firmly believe it was the idiopathic anemia that took her life: 'the chills' rapid heart beat, shortness of breath. I suspect it was Autoimmune Hemolytic anemia that took her life.

FIND 'the hard to find ANEMIA' - That is part of CFIDS
http://www.valdezlink.com/re/helps2.htm

This is what I tried to share with Dr. Ron Davis
http://www.valdezlink.com/re/myletertoama.htm

We should reconsider that cancer starts one place and spreads from there to somewhere else. We should suspect exposure to monobutyl ether as cause of these and many other cancers. Where it shows up first is irrelevant.

Spent your research dollars on finding ways to stop an autoimmune system & in finding the anemia that evades medical science. (check into glycobiology)

What we call 'flu' has nothing to do with a virus. It is exposure to BUTYL. Congress needs to ban this chemical that is too strong in many cleaning products, paint, etc

Margaret Diann

http://well.blogs.nytimes.com/2008/09/18/voices-of-pancreatic-cancer/#comment-59016

Patient Voices: Pancreatic CancerMultimedia Feature
The faces of pancreatic cancer. (Monica Almeida/The New York Times, Jonathan Alcorn, Brendan Smialowski, Josh Ritchie and John Nowak for The New York Times)

Earlier this year, Carnegie Mellon professor Randy Pausch spoke to a Congressional committee about funding for pancreatic cancer, the disease that eventually took his life this summer. “We don’t have advocates for this disease,” he said, “because they don’t live long enough.”

Nearly 34,000 people a year learn they have the deadly disease. In today’s Patient Voices feature by my colleague Karen Barrow, six of them share their stories of living with pancreatic cancer. A seventh voice belongs to a sister who lost her brother to the disease.

You’ll meet Sandra Balkman Martin, 50, a retired teacher and eight-year survivor of the disease. And there’s Dr. Ron Davis, immediate past president of the American Medical Association, who recently discovered he has late-stage cancer. And there’s Carolynn Kiel, 66, of Laguna Woods, Calif., who lost her mother and sister to pancreatic cancer and who recently learned that she, too, has the disease.

Listen to their stories and others in the Voices of Pancreatic Cancer.

Patient Voices: Pancreatic Cancer

Low survival rates make pancreatic cancer a tough disease to face. Seven men and women speak about survival, loss and living with a diagnosis.