A Christmas story, if there ever was
one.
Read this series of communications
and you will get a feel for the
extent and depth of what dietary
micronutrient
supplements are capable of doing and
in this and many other gene defects
have done. To think that Abby was
put in an orphanage due to her gene
defects by her birth parents and a
couple took her out and gave her
glyconutrient food
supplements. Her response might
put some perspective to the
outlandish assertions I just sent to
you, that just happen to be factual
and are the truth. No, sorry the
FDA and organized medicine would
only scoff and say there is no
evidence-based support that such
things can happen.
|
Subject: Abigail Sullivan
(now 4 yrs old)
Dear Dr. McDaniel
and staff,
It has been a
while since we have reported on Abby's
progress... so much has happened in 2005.
Without overstating it in the least, we have
experienced what is no doubt a miracle.
As I reported
previously, Abby was diagnosed with
Mitochondrial disease (ragged red fiber variety)
in Dec 2004 after over year of relentless
seizures and rapid physical decline... during
2004, she had upwards of 50 seizures a day at
times, lost her ability to walk (or crawl for
that matter), stopped speaking, and was
declining rapidly in all areas. We sincerely
believed we were losing her. In October 2004,
we were admitted (yet again) to the hospital for
a "swallow study" (she was having difficulty
chewing and swallowing her food) and a battery
of genetic and other tests. Shortly afterward,
she underwent a muscle biopsy... in December,
the result of that biopsy was her diagnosis. By
January, we were discussing with her doctor the
possibility of installing a feeding tube.
In late January
(after hearing about glyconutrition earlier but
being unable to determine what it was and being
unsure if it could really help Abby), I spoke
with Debora Miklose, whose daughter Emily also
has Mitochondrial disease... she confirmed what
I had been told.... that Emily's prognosis was
at one time as bad as Abby's but that she had
experienced a dramatic reversal of her symptoms
using glyconutrition. That was all I needed to
hear... I had since been made aware of the
"Hope" program at Mannarelief and contacted them
immediately.
In late January
2005, Abby began a glyconutrition protocol
outlined by Mannarelief consisting of (classic)
Ambrotose, Phytaloe, Ambrotose AO, Plus,
Immunostart, Mannabears, and Glycobears. She
also takes a B-complex with Vitamin C (she was
on this prior to glyconutrition in addition to
Co-enzyme Q-10 and other supplements with no
visible results... we no longer give her
Q-10).
Within days, we
could see a change in Abby's energy levels... we
were afraid we were imagining things and were
cautious about the idea that we might have a
tendency to "see what we wanted to happen". It
didn't take long to realize that our greatest
hope was being fulfilled. In April, Abby began
to walk again... she was also babbling
constantly
and began
learning to speak again. Within months, she was
running, climbing stairs, and regaining lost
abilities quickly. Best of all, her seizures
inexplicably stopped! There had not been a day
since the onset of her seizures in which she
hadn't had at least a dozen... we had been on
countless medications with no benefit and a
myriad of side effects... we have been able to
withdraw her anti-seizure medications over the
course of several months and she has had no
recurrence of seizures.
Abby in now a
nearly normal 4 yr old... physically, she
appears normal and can do most things that any 4
yr old can do... she is behind her peers in
speech, but is gaining ground rapidly (she spent
over a year in an orphanage, so this may account
for her delays as much as her health problems).
Abby is growing like a weed, eating like a
horse, and enjoying every minute of life. She
has quite a sense of humor and can frequently be
found trying to yank Mommy's pants down or
pulling the dogs sweater over her head while
giggling uncontrollably.
I was initially
surprised that we were not besieged with
requests for information from other families
whose children have mitochondrial disease...
and then I
began to hear and see how Doctors reacted to the
news of our miracle. Some have discouraged
parents from trying glyconutrition, saying "we
don't know what it will do to your child"... of
course, WE ALL KNOW WHAT THE DISEASE WILL DO TO
THESE CHILDREN!!! I've come to understand that
not everyone will be willing to accept the idea
that something as "simple" as nutrition can have
such a powerful effect. The Doctors have us all
convinced that we need "real medicine"... not
some "feel good thing" like glyconutrition. I
myself had to reach a point of desperation where
I was willing to try anything to avoid what we
were told was inevitable.
I know I'm
preaching to the choir here, so I just want to
offer one final thought. I understand the
liabilities associated with
Mannarelief/Mannatech telling people that
glyconutrition will cure any specific disease or
condition. As a result, it can be very
difficult to find information to help guide
people suffering with various ailments who might
benefit from glyconutrition. Please feel free
to give my name and e-mail address to any
families who might need our help. We'd love
nothing more than for another family to
experience what ours has in 2005. Merry
Christmas and Happy New Year to you and yours...
></SCRIPT>
God Bless,
Don Sullivan
Reply about Abby
http://www.valdezlink.com/pages/ahappystory.htm
Nutrition
Paradigm
And
Disclaimer
More Info
www.glyconutrientsreference.com/Frames/glyconutrientsreferenceframeset.html
The thought on using
glyconutrients,
in my opinion, is that it helps
the immune system to work properly instead of
being autoimmune - 'friendly firing' ... and
then the body can stop tumor formation ... &
recruit its own stem cells. Glyconutrient
trials are coming from research done by
Roger J. Williams