A few years ago I was diagnosed with having a tumor on my pituitary gland.
Since then i have been having severe migraines. I was wondering if anyone else out there has similar problems?

Does anyone have any good recommendations for migraines? Mine are so bad that sometimes i go blind, or lose my ability to talk.

My endocrinologist said that he can't link the tumor to be the cause of the migraines, but i never had one before i had the tumor.

Normal painkillers no longer work, and i'm wondering what to do.

Also, has anyone had their tumor removed?
I take medication to shrink mine, but its been years, and the tumor is still there!

Thanks for any help or advice anyone can provide!
Used to have severe migraines, but I no longer do. They weren't caused by a tumor though but by hormonal fluctuations, stress, certain food additives and caffeine. After changing my diet and cutting out caffeine they finally went away.  When I had migraines, the only thing that worked for me were Imitrex injections. I've never tried the pills, my doc prescribed the injections only and they would stop a full blown migraine dead in its tracks within minutes. I also lost my vision a few times, which is quite scary.
 
Did you have flu symptoms before?

I think they are related; look into the CFIDS pattern

These and other things

Memory loss too?

Have you had fluctuating body temperature? Is it subnormal now?
My aunt had a tumor on her pituitary gland. She eventually did have it removed by surgery. They could not get all of it due to it's location.

Since migraines can be genetic and my family gets them, not sure if her's were caused by the tumor or not.

However, I get terrible migraines. I was told I would outgrow them, no such luck.

I use something called Maxalt. It is like Imitrex. You can ask for a sample from your regular doctor as your endocrinlogist may not have it. I know my endo does not and I have thyroid problems.
I hope you have prescription insurance as these meds are expensive.

You need to do a search on the net on what causes migraines too. Foods, hormones, allergies, weather, stress, sounds, lights etc can be triggers. Try to remove them from your life when you find out what your triggers are.

The side effects of a migraine are very scary but they do affect so much of how one can feel.

You should also see a neurologist and maybe they can assist you as well.

Hope you feel better soon.
I was told for years that my migraines were not migraines because I did not see things nor vomit but I finally put up a fuss and insisted on seeing a neurologist. He said of course they are migraines and prescribed Zomig. Works like a freaking miracle.

I suffered for over a decade. No conventional pain killer did a thing. I was prescribed Vicodin among others and muscle relaxants too. Bio feedback, physical therapy too.

I tried Maxalt, Emerge and Imitrex as they were all cheaper with my insurance but they did not work and Imitrex caused a weird reaction.

My migraines are getting worse as I get older. He wants me to try Topamax to reduce their frequency.

A friend with severe disabling migraines hasn't had one at all since she has been through menopause. She is almost twenty years older than me so I hate to wait that long...
The reason you think migrains can run in families is because we have multiple generations of chemically poisoned (by the same chemical family); which is a teratogen chemical & can also affect future generations.

There are often other issues, like not sleeping when you should. I asked an EMT from the Exxon Valdez oil spill cleanup what his doctor prescribed for his sleeplessness. He said it was for him like the 'magic bullet' He used to barely get any sleep and now he can get 6-7 hours a night. He said all the side effects are not known, and that he takes 1/4 of what the doctor said he could take: 'Remeron' or Mirtazapine

The web page reference I just gave is what was shared with me by a gulf war vets' doctor who served during that time.

I think all of the issues surrounding this chemical's effects are autoimmune issues of which CFIDS is the main issue.

I have had a couple of people share with me that their migrains stopped when they entered puberty ... or when they entered menopause. I think it must have something to do with hormones being 'out of whack' and that the change in hormones is beneficial.

I would ask the doctor about Glyconutrients. I would ask the doctor about Rituxan if you have fatigue and any autoimmune issues including cancers
I have also been diagnosed with macroadenoma, which is a growth in the pituitary gland. I am currently 19. I had been diagnosed late last year and began taking medication for it called Dostinex. It dropped the levels of prolactin from 6900 (extremely high) to 100 (which is close to almost normal). When i had discovered that it was thus low i stopped taking the medication. Now three months down the line i have gotten 3 migranes, 1 migrane 1 month apart from each other and then 1 migrane 5 days apart from the other and the second time i got two migranes in the space of 5 hours.

When i was younger i used to receive migranes often and just lived with them because my mom always said that i would grow out of it, which by the age of about 15 years old i stopped getting them. At this point i am almost convinced that when i received the migranes when i was younger it was due to the growth developing, as the growth does not just appear there one day, it does take time to develop. And now that i stopped the medication without being certain that the growth had gone i have been getting migranes. So in my personal opinion i think the two are linked. I am going to see my neurosurgeon next week to see what the verdict is and possibly another MRI scan and then i will post another note on how the migrane and the pituitary gland are linked.

I also have a medication that i have been taking for the migranes which cause almost no pain at all. I can't remember the name but when i do my next post i will include the medications name as well.

Good luck with the growth. Hopefully you have been taking medication for it to drop it's size
You should also check to see what cleaning products are being used in your house. The chemical that I think is the cause of these kinds of migraines (either for you directly ... or for someone in your family line that affects you along the order of a late to show up 'birth defect') is what I suspect for them; and usually there are other issues and FATIGUE ... especially if you have your own direct exposure. Many people do.

These are the kind of horrible headaches explained to me by the Exxon Valdez Oil spill cleanup workers (exposed to 2-butoxyethanol) and the Gulf War Vets. My friend also explained about similar headaches.

She had a horrible series of headaches last Sept after 'the flu' went through her area.

I personally think they must be hormonal and that they may be autoimmune hypothalamus headaches
The kind of headaches that go with Chronic Fatigue Immune Dysfuntion Syndrome symptoms (CFS, FM also) are a very serious matter