I AM GULF WAR VETERAN INTERESTED IN HEARING  FROM ANYONE SUFFERING FROM AVASCULAR NECROSIS.  -  Darryl
AVASCULAR NECROSIS

I am also a Gulf War veteran with Avascular Necrosis. I am 32 years old and in Jan. 2000 I had both my hips replaced. As of today no one has been able to give me a cause for the disease because I haven't had any trauma, don't take steroids, do not consume heavy amount of alcohol, am not a diver, or fit any other profile that put me at risk for AVN. I would like to hear from anyone either suffering from the disease or anyone that may shed some light on a possible connection between AVN and Desert Storm. 

I have had and continue to have other health problems that prior to the Gulf War were non-existent and still have no explanation for any of them.  -  Ray

Shared on a 1999 discussion forum

 
GWS, anemia, chronic fatigue, body destroying red blood cells

I arrived in country on December 25, 90 and departed May 91. I have since gone through periods of chronic fatigue which have gotten increasingly worse.

After a bout with an unexplainable anemia which healed itself last fall, I am now suffering with an even worse case. It seems to be cyclic. My doctor is at a loss. I know this is due to desert storm but I need some back up to get my doctor to take it seriously.

Anyone else out there going through this? I have never had the rash problem. Forgetfulness, joint pain, etc. , yes, but no rash.

If anyone out there has info they can share, please e-mail me.

Matthew A. Hasbrook <wordsmith.usmvmc@mindspring.com>

May 25, 2000

e-mail does not work 2-23-06

Hi! My name is Ardy. We are from Alberta, CA. My husband was stationed in Quatar in 91. His condition is that no one wants to state as the symptoms are symptomatic or various other disorders, each with their own symptoms. Combine them all together and they result in the GWS. The doctors up here do not believe in GWS. We have a great doctor where I work which specializes in the GWS, however each and every test is individualized and not connected together. That is the whole problem. The MDs refuse to connect something which is UNEXPLAINABLE or reasonable to them. Please say someone will answer, as I cannot find anyone to answer anything and always evade the questions and think I am just being paranoid and stupid.
Tammy Feeney <thumperpeanut@icqmail.com>
Hi, my name is pete tynan i too was in the 1st. and our alarms went off once. we were put into mop gear for 24 to 32 hrs. and then told all clear "false alarm". during this time we were also instructed to take a "pb" tablet. when i took my mop gear off my chest and other body hair had grown radically. i don't mean darker or thicker, i mean dark and thick in places it hadn't been before. has anyone else had a similar experience?

also do you remember humerless medics not from your unit arriving with a special inoculation (just another "for whatever" shot) only these medics wouldn't tell us what it was, and acted really weird when joked with about it. i know that something was changed in me during this brief period of a few days by the hair growth. i came home from the gulf injured earlier than the rest of my unit and gut leave at home to recuperate. during this time i showed my family and friends my new full chest of hair.

They were all really freaked out, at the time i was just happy to be alive. all of this was observed way before any gws scandals so i know something i was given or exposed to during this alarm period you mentioned probably caused some radical changes. hey mom, I'm an x-files baby! seriously i now have intermittent leg aches, some keep me in bed or a hot tub all day. i am also as of a few years ago noticed a change in my ability to deal with stress, concentrate, or control impulsive behavior. i was never the most emotionally stable person but as of the last year

I've been unable to keep a job or deal reasonably with situations that cause stress. emotionally i feel like a 14 year old, and i just have a terrible sense of confusion that rarely lifts. it is often bad enough that i try to go with it and not care. oh yeah, my bowels went south shortly after the gulf war. how am i supposed to be able to patently deal with a complex process of dealing with the v.a. and aid apps. i don't even think ill ever be able to keep a real job again. gabba gabba hey.


Pete Tynan <pixiedee55@msn.com>, 

I have tried everything. Does anyone have tremor problems from this or deal that has found anything that slows this stuff down. I do not know how long the body can live in a flight sympathetic state on a constant basis. I have a friend that is trying to decrease his mood swings as well as INCREASE HIS LEVEL OF concentration BACK TO NORMAL . I WOULD WELCOME FEEDBACK.
LEVI  4-20-2000
Hi Levi,
The closest thing to what you call tremors that both my husband and I experience is our bodies at times go through a jerking motion which we can't seem to control. This happens mostly at night when we are trying to sleep. Even though I was not in Saudi (my husband was) it still happens to me along with the many other symptoms. So if this is what your talking about, you're not alone and I don't have an answer, sorry.

Freda H. Babinski <Tndeer1@aol.com>

Does this get worse over time? I just began researching GWS last night, as a light bulb clicked within me yesterday that most of my husband's problems over the last weeks (4 months) may be directly related to GWS.

He had major surgery (indicated below, under the 'Kidney' topic) back in 1994, as a direct result of the war. He is receiving disability  from the army, for the rest of his life, as a result of this.

My husband has been suffering gravely from fatigue/exhaustion since the beginning of this year, with absolutely NO motivation to help around the house anymore. He does work a full-time job, and on his days off, he spends moping  on the couch, constantly complaining of sore muscles and flu-like symptoms.   This has been going on since the beginning of this year. His memory loss has gotten worse over time, and he is even displaying a negative personality change. All of this has taken a toll on our marriage, and I'm not sure where to go from here.

Does this all sound like GWS? Other family members are now becoming very concerned, as they are seeing (and living) the same things I am. I want to help him, but don't know where to begin.

He was headquartered in the tank division, 1st Battalion, 72nd Armor, US Army.

bree  April 10, 2000

The answer to your question is absolutely ... YES ... this is coming from a Gulf War Veteran who is suffering from the "SYNDROME" (I hate that word) 

I started feeling the symptoms about 6 months after the war and it has gotten progressively worse each year....first it started out with a little fatigue and has grown into a daily chore to even get out of bed.

While on active duty exercise got harder and harder to do...so I got out of active duty...and joined the National Guard (figured I could still be part of the military that way) a couple of years later I was retired (medically) because I was getting to the point where I could no longer perform at military standards (that's a rough blow to man who has 15 years and combat)

Now I try to live day to day on the candy (drugs) the VA has given me and the meager disability.  I get and try to keep my family together and happy. There are many days I feel it would be easier for me to just die and let my family get the life insurance than to let them watch me just disappear through this illness.

William Lake (medically retired) <lakew@pdqnet.net> e-mail does not work

I have been doing a lot of research and have found a lot of information on gulf war syndrome, more than happy to share& also we are losing benefits from the federal government & thats not a good thing! email vetshelpingvets@onebox.com

tony starks <vetshelpingvets@onebox.com>

Hi Tammy,
Didn't see you e-mail address...so I'll just write back to here. My husband was with the 3rd armored division. He was with the divisional aviation unit. He was deployed out of Germany to the Gulf. His symptoms started in Kuwait. He was med-evaced to Saudi and hospitalized there for a short time. He came back to Germany and was acutely ill. Things have progressed to a more chronic picture with symptoms that are at times worse then others.
We just got the results of the neuro-psych eval. He has a temporal lobe dysfunction. What was interesting about his findings is that the brain scan he had a few days later showed left temporal lobe abnormalities. No one is sure what the significance of these findings are. We are still in search of someone who can sort this all out for us. Keep in touch. Nancy  May 05, 2000

Kristie 4-22-00

I have GWS and Mycoplasma Fermentans. I am just contemplating doing hyberbaric myself. My doc is Dr. Gunnar Heuser out in California and I am going to be starting treatments soon. I do not know how successful it is but I can let you know.

Ongoing FLU-like symptoms may mean NEW exposure to EGBE

Flu may not be the flu  - but a chemical poisoning ongoing